Being diagnosed with HR-positive, HER2-negative (HR+/HER2-) breast cancer is a life-altering moment—but it’s not one you have to face passively.
Yes, your doctors and specialists play a huge role in your care. But there’s someone just as important on your team: You.
This guide is here to help you speak up, stay informed, and stand strong. You are not just a patient—you are an advocate, a decision-maker, and an essential part of your treatment journey.
🟣 Step 1: Know Your Rights as a Patient
When you understand your rights, you’re more likely to feel respected, heard, and empowered throughout your care.
Most hospitals or clinics have a Patients’ Bill of Rights. Ask for a copy. Here’s what it typically includes:
- Timely access to care and test results
- Access to your medical records (lab results, imaging, pathology reports, genetic testing, etc.)
- Respect and dignity in all interactions
- Freedom from discrimination of any kind
- Clear explanations of your diagnosis and treatment options
- Time and space to ask questions—there’s no such thing as a “dumb” question
- Right to know your provider’s qualifications
- Confidentiality regarding your health and private information
- Right to say “No”—You can delay, decline, or change treatment at any time
💡 Did you know?
You’re allowed to get a second opinion. In fact, most doctors encourage it.
🔵 Step 2: Use Your Voice
Advocating for yourself doesn’t mean you have to be loud—it just means being clear and consistent about your needs.
You may have to speak up with:
- Medical professionals
- Insurance reps
- Schedulers
- Employers
- Even friends and family
These all require different communication styles. That’s okay. The key is being prepared and proactive.
🗂 Quick Tips:
- Go into appointments with a list of questions or requests.
- Practice explaining what you need—out loud if it helps.
- Take time alone to reflect on what’s important to you and where your energy is best spent.
- Treat your support team like partners, not just helpers. You’re all working toward the same goal: your health and peace of mind.
🟢 Step 3: Get Educated—On Your Terms
“Health literacy” just means being able to understand and use medical info in ways that help you make decisions.
You don’t need a medical degree—you just need clarity.
Here’s how to build your confidence:
📓 During Appointments:
- Bring a notebook or use your phone to take notes.
- Ask a trusted person to come with you and help record info.
- Don’t be afraid to say, “Can you explain that again, more simply?”
- Repeat things back to make sure you understand. (“So you’re saying…?”)
📁 After Appointments:
- Keep everything in one place—a binder, notebook, or digital folder.
- Review your notes and documents between visits.
- Write down questions for your next appointment.
🔎 Choose your sources wisely.
The internet is full of info, but not all of it is reliable.
Stick with trusted sites like:
Also, look for content that’s specific to HR+/HER2- breast cancer and any genetic info related to your diagnosis. Always verify what you find with your doctor.
🧡 Real Talk
You may not have chosen this journey—but you can choose how you travel through it.
By asking questions, learning what you can, and using your voice, you create a stronger foundation—not just for your treatment, but for your peace of mind.
You are not alone, and you are not powerless.
You are an advocate, a learner, and a warrior—and you’ve got this.